Instrument details

Instrument Title

Living with HIV/AIDS Scale

View PDF - Living with HIV AIDS_ Holzemer.pdf

Source Article

Holzemer, W. L., Spicer, J. G., Wilson, H. S., Kemppainen, J. K., & Coleman, C. (1998). Validation of the quality of life scale: Living with HIV. Journal of Advanced Nursing, 28(3), 622-630.

Response Options

No experience/ Not appropriate, Never/ Not True, Sometimes True, Usually True, Always True

Survey Items

  1. It’s important to be in charge of this disease
  2. I have a meaningful life
  3. I am comfortable and well cared for
  4. It’s hard to give up doing things I like
  5. I want to stay home to receive treatments
  6. My family is embarrassed to see me
  7. I have no energy to fight back
  8. I have not had a good experience with a church
  9. I draw strength from my family
  10. My financial situation is distressing
  11. I live my life day to day
  12. I want to be independent and take care of myself
  13. I am afraid to die
  14. I have a lot of regrets about my life
  15. My medicines are taking over my life
  16. My pain is hard to manage
  17. I feel somewhat disconnected and alone
  18. I am not enjoying life at all
  19. I feel more spiritual as I near the end
  20. I use my time wisely
  21. It frightens me that I have so little control over my illness
  22. I need some help to let go
  23. My family does what needs to be done
  24. I am afraid of pain and suffering
  25. I have so many things in my life yet undone
  26. Loss of my independence is very painful to me
  27. I take time for the important things in life
  28. I may choose to self-deliver (suicide) near the end
  29. I need to make the extra effort to do special things
  30. I don’t have to keep fighting any more
  31. I am embarrassed by the way I look
  32. I want to die at home
  33. Losing my looks is devastating to me
  34. I don’t want technology to keep me alive when I am ready to die
  35. Being back in my home town would mean a lot to me
  36. I feel no sense of purpose in this life
  37. It is very important to be surrounded by people I love
  38. I don’t know about tomorrow so I live for today

Internal Reliability

Cronbach's alpha = 0.84

Validity

Content, construct, discriminant validity

Google Scholar

View article on Google Scholar

Terms Of Use

Individuals may use this information for research or educational purposes only and may not use this information for commercial purposes. When using this instrument, please cite:

Holzemer, W. L., Spicer, J. G., Wilson, H. S., Kemppainen, J. K., & Coleman, C. (1998). Validation of the quality of life scale: Living with HIV. Journal of Advanced Nursing, 28(3), 622-630.

When presenting results using any survey information you obtained from the SABI, please acknowledge the University of North Carolina at Chapel Hill Center for AIDS Research (CFAR), an NIH funded program P30 AI50410.