Instrument details

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Instrument Title

Neuro-QoL Short Form v1.0 – Stigma

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Source Article

Rao, D., Molina, Y., Lambert, N., & Cohn, S. E. (2016). Assessing Stigma among African Americans Living with HIV. Stigma and health, 1(3), 146–155. https://doi.org/10.1037/sah0000027

Response Options

5-point Likert scale (1=never to 5=always)

Survey Items

Enacted Stigma

  1. Because of my illness, some people have seemed uncomfortable with me.
  2. Because of my illness, people were unkind to me.
  3. Because of my illness, some people have avoided me.
  4. Because of my illness, I was treated unfairly by others.
  5. Because of my illness, people tended to ignore my good points.
  6. Because of my illness, I worried that I was a burden to others.
  7. Some people acted as though this was my fault.

    8. Internalized Stigma
  8. Because of my illness, I felt emotionally distant from other people.
  9. Because of my illness, I felt left out of things.
  10. I felt embarrassed about my illness.
  11. Because of my illness, I felt different from others.
  12. I avoided making new friends.
  13. I was careful who I told about my illness.
  14. I worried that people would tell others about my illness.

Internal Reliability

Cronbach’s α=0.93

Validity

Concurrent validity

Google Scholar

View article on Google Scholar

Terms Of Use

Individuals may use this information for research or educational purposes only and may not use this information for commercial purposes. When using this instrument, please cite:

Rao, D., Molina, Y., Lambert, N., & Cohn, S. E. (2016). Assessing Stigma among African Americans Living with HIV. Stigma and health, 1(3), 146–155. https://doi.org/10.1037/sah0000027

When presenting results using any survey information you obtained from the SABI, please acknowledge the University of North Carolina at Chapel Hill Center for AIDS Research (CFAR), an NIH funded program P30 AI50410.