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Instrument Title

Adolescents Living with HIV Stigma Scale (ALHIV-SS)

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Source Article

Pantelic, M., Boyes, M., Cluver, L., & Thabeng, M. (2016). ‘They Say HIV is a Punishment from God or from Ancestors’: Cross-Cultural Adaptation and Psychometric Assessment of an HIV Stigma Scale for South African Adolescents Living with HIV (ALHIV-SS). Child Indicators Research, 11(1). https://doi.org/10.1007/s12187-016-9428-5

Response Options

1: Never, 2: Sometimes, 3: Most of the time

Survey Items

Internalized Stigma
This is Lundi. Living with HIV is difficult for him sometimes. Some days Lundi struggles to feel good about himself. Could you say how much of these things are true to you?

  1. Sometimes Lundi feel that he is not as good as other kids because he has HIV. Do you ever feel this way?
  2. Sometimes Lundi feels like he would rather die than live with HIV. Do you ever feel this way?
  3. Sometimes Lundi feels like he is a bad person because he has HIV. Do you ever feel this way?
  4. Sometimes Lundi feels ashamed that he is HIV-positive. Do you ever feel this way?
  5. Sometimes having HIV makes Lundi feel contaminated and dirty inside. Do you ever feel this way?

Anticipated Stigma
Can you tell us a little bit about what people in your community think about HIV?

  1. People in my community think that a person with HIV is disgusting.
  2. People in my community think that HIV is a punishment from God or from ancestors.

Enacted Stigma
Remember Lundi? He is having a hard time because of his HIV status. Sometimes people treat Lundi differently from other kids just because he is HIV-positive. This is not fair. Could you say how much these things have been true for you?

  1. I have stopped spending time with some kids because of their reactions to my HIV status.
  2. I have lost friends by telling them I have HIV.
  3. I’ve been teased because of my HIV.

Internal Reliability

Cronbach’s α=0.70 (Anticipated stigma); 0.57 (Enacted stigma); 0.75 (Internalized stigma)

Validity

Concurrent criterion validity

Google Scholar

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Terms Of Use

Individuals may use this information for research or educational purposes only and may not use this information for commercial purposes. When using this instrument, please cite:

Pantelic, M., Boyes, M., Cluver, L., & Thabeng, M. (2016). ‘They Say HIV is a Punishment from God or from Ancestors’: Cross-Cultural Adaptation and Psychometric Assessment of an HIV Stigma Scale for South African Adolescents Living with HIV (ALHIV-SS). Child Indicators Research, 11(1). https://doi.org/10.1007/s12187-016-9428-5

When presenting results using any survey information you obtained from the SABI, please acknowledge the University of North Carolina at Chapel Hill Center for AIDS Research (CFAR), an NIH funded program P30 AI50410.