Instrument details

Instrument Title

A scale to measure Internalized and Enacted HIV Stigma

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Source Article

Hargreaves, J. R., Krishnaratne, S., Mathema, H., Lilleston, P. S., Sievwright, K., Mandla, N., Mainga, T., Vermaak, R., Piwowar-Manning, E., Schaap, A., Donnell, D., Ayles, H., Hayes, R. J., Hoddinott, G., Bond, V., Stangl, A., & HPTN 071 (PopART) Study Team (2018). Individual and community-level risk factors for HIV stigma in 21 Zambian and South African communities: analysis of data from the HPTN071 (PopART) study. AIDS (London, England), 32(6), 783–793. https://doi.org/10.1097/QAD.0000000000001757

Response Options

Internalized stigma – 4-point scale (strongly disagree to strongly agree); Frequency of experienced stigma – 5-point scale (never to often)

Survey Items

Internalized Stigma

  1. I have lost respect or standing in the community because of my HIV status.
  2. I think less of myself because of my HIV status.
  3. I have felt ashamed because of my HIV status.
Frequency of experienced stigma (any setting)
  1. People have talked badly about me because of my HIV status.
  2. Someone else disclosed my HIV status without my permission.
  3. I have been verbally insulted, harassed, and/or threatened because of my HIV status.
  4. I have felt that people have not wanted to sit next to me, for example, on public transport, at church, or in a waiting room because of my HIV status.
Frequency of experienced stigma (health setting)
  1. I have been denied health services because of my HIV status.
  2. Healthcare workers talked badly about me because of my HIV status.
  3. A health worker disclosed my HIV status without my permission.

Internal Reliability

Cronbach’s α=0.82 (internalized stigma); 0.92 (Frequency of experienced stigma (any setting)); 0.90 (Frequency of experienced stigma (health setting))

Validity

Validity information was not available.

Google Scholar

View article on Google Scholar

Terms Of Use

Individuals may use this information for research or educational purposes only and may not use this information for commercial purposes. When using this instrument, please cite:

Hargreaves, J. R., Krishnaratne, S., Mathema, H., Lilleston, P. S., Sievwright, K., Mandla, N., Mainga, T., Vermaak, R., Piwowar-Manning, E., Schaap, A., Donnell, D., Ayles, H., Hayes, R. J., Hoddinott, G., Bond, V., Stangl, A., & HPTN 071 (PopART) Study Team (2018). Individual and community-level risk factors for HIV stigma in 21 Zambian and South African communities: analysis of data from the HPTN071 (PopART) study. AIDS (London, England), 32(6), 783–793. https://doi.org/10.1097/QAD.0000000000001757

When presenting results using any survey information you obtained from the SABI, please acknowledge the University of North Carolina at Chapel Hill Center for AIDS Research (CFAR), an NIH funded program P30 AI50410.