Please see below for when each domain is projected to be updated.
Quality of Life — This domain is scheduled to be updated TBD
| Domain | Sub-Domain | Instrument Name | Description | Citation (Authors) | Language/ Geographic Location |
Population(s) | Details & PDF |
|---|---|---|---|---|---|---|---|
| Health-related quality of life of HIV-infected women: Evidence for the reliability, validity and responsiveness of the medical outcomes study short-form 20 | The scale measures health related quality of life using six subscales: physical functioning (6 items), role functioning (2 items), social functioning (1 item), mental health (5 items), general health perceptions (5 items) and pain (1 item). | Smith, M. Y., Feldman, J., Kelly, P., DeHovitz, J. A., Chirgwin, K., & Minkoff, H. (1996). Health-related quality of life of HIV-infected women: Evidence for the reliability, validity and responsiveness of the medical outcomes study short-form 20. Quality of Life Research, 5(1), 47-55. |
English |
* HIV-positive * Women |
View Details | ||
| World Health Organization's WHOQOL-BREF quality of life assessment | The WHOQOL-BREF is a 26-item scale, which is a brief version of the WHO QOL-100 (100-item scale), and has four domain scores. There are also two items that are examined separately, i.e., an individual's overall perception of quality of life and the individual's overall perception of his or her health. The main domains studied are physical domain, psychological domain, social relationships domain and environment domain. The domain scores are scaled in a positive direction (i.e., higher scores denote higher quality of life). The mean scores are then used to calculate the domain score. | Skevington, S. M., Lotfy, M., & O'Connell, K. A. (2004). The world health organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A report from the WHOQOL group. Quality of Life Research, 13(2), 299-310. |
English |
* HIV-negative |
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| Quality of life enjoyment and satisfaction questionnaire | "This questionnaire assesses satisfaction in 11 life areas, such as physical health, social relationships, and economic status. Items are rated from 1 (very poor) to 5 (very good), then summed to yield a total score" | Endicott, J., Nee, J., Harrison, W., & Blumenthal, R. (1993). Quality of life enjoyment and satisfaction questionnaire: A new measure. Psychopharmacology Bulletin, 29, 321-321. |
English |
* HIV-negative |
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| Spitzer Quality of Life Index | It was designed for use by physicians. Median completion time was one minute. "Physical, social, and emotional aspects of life are represented by five single-item dimensions (activity, health, support, outlook, and daily living). Specific evaluations include questions regarding the participant's occupational situation (activity); activities of daily living such as eating, hygiene, and transportation (daily living); participant's perception of health and energy levels (health); support and contact of friends and family (support); and assessment of the participant's outlook on life (in control of personal circumstances, anxiety, depression). Each item is scored from 0 to 2, with 2 representing the highest level of functioning. A composite score ranging from 0 to 10 is the sum of the item scores." | Spitzer, W. O., Dobson, A. J., Hall, J., Chesterman, E., Levi, J., Shepherd, R., et al. (1981). Measuring the quality of life of cancer patients: A concise QL-index for use by physicians. Name Journal of Chronic Diseases, 34(12), 585. |
English |
* Patients * HIV-negative |
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| A health status questionnaire using 30 items from the medical outcomes study | Generic measure. The 30-item instrument contains a subset of the MOS (Medical Outcomes Study) measures of health-related quality of life. The questionnaire measures ten aspects of health and takes less than 5 minutes to complete. It measures: overall health, pain, physical functioning, role functioning, social functioning, mental health, energy/fatigue, health distress, cognitive functioning, quality of life, health transition. | Wu, A. W., Rubin, H. R., Mathews, W. C., Ware Jr, J. E., Brysk, L. T., Hardy, W. D., et al. (1991). A health status questionnaire using 30 items from the medical outcomes study. Medical Care, 29(8), 786-798. |
English |
* HIV-positive |
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| EuroQol (EQ-5D) | The EQ-5D includes a weighted sum of five domains (EQ-5D Index) and a visual analog scale (EQ-VAS). | Wu, A. W., Jacobson, D. L., Frick, K. D., Clark, R., Revicki, D. A., Freedberg, K. A., et al. (2002). Validity and responsiveness of the euroqol as a measure of health-related quality of life in people enrolled in an AIDS clinical trial. Quality of Life Research, 11(3), 273-282. |
English |
* HIV-positive |
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| Satisfaction with Life Scale (SWLS) | The five-item scale measures subjective life satisfaction. The response options are on the 7-point scale from 1 =strongly disagree to 7 = strongly agree. | Diener, E. D., Emmons, R. A., Larsen, R. J., & Griffin, S. (1985). The satisfaction with life scale. Journal of Personality Assessment, 49(1), 71-75. |
English |
* Students * HIV-positive |
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| Quality of Life Index | The authors examined the psychometric properties of the Quality of Life Index (QLI) (Ferrans & Powers, 1985a). It was found that four dimensions underlie the QLI: health and functioning, socioeconomic, psychological/spiritual, and family. The original scale is "a 64-item measure composed of two parts: Part I measures satisfaction with various domains of life, and Part 11 measures the importance of the same domains to the subject. Subjects respond to the items on 6-point scales: for Part I the scale ranges from "very satisfied" (6) to "very dissatisfied" (1) (coded +2.5 to -2.5 for analysis), and for Part I1 it ranges from "very important" (6) to "very unimportant" (1)." Information on scoring is provided on page 31 of the article. The scoring procedure: "the satisfaction rating for each item was multiplied by its respective importance rating, yielding an adjusted item score. The adjusted item scores were then summed to produce the domain subscale scores and an overall QOL score." | Ferrans, C. E., & Powers, M. J. (1992). Psychometric assessment of the quality of life index. Research in Nursing & Health, 15(1) |
English |
* Patients * HIV-negative |
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| Schedule for Evaluation of Individual Quality of Life (SEIQoL)SEIQoL-DW) | A brief measure, the SEIQoL-DW "is derived from the schedule for evaluation of individual quality of life (SEIQoL). The measure allows respondents to nominate the areas of life which are most important, rate their level of functioning or satisfaction with each, and indicate the relative importance of each to their overall quality of life. Given its practicality and brevity, the measure should prove particularly useful in clinical situations where patient generated data on quality of life is important." "The direct weighting instrument is a simple apparatus consisting of five interlocking, colored laminated circular disks that can be rotated around a central point to form a type of pie chart. The laminated disks are mounted on a larger backing disk, which displays a scale from 0 to 100, and from which the relative size of each colored segment can be read (fig 1). Each segment is labelled with a life area nominated by the respondent as being important to his or her overall quality of life. The respondent adjusts the disks until the size of each colored segment corresponds to the relative importance of the life area represented by that segment. These segments may be adjusted and readjusted until respondents are satisfied that the proportion of the pie chart given to each life area accurately reflects the relative weights they attach to those life areas. If the respondent nominates fewer than five cues, the system allows for a corresponding number of segments to be manipulated." | Hickey, A. M., Bury, G., O'Boyle, C. A., Bradley, F., O'Kelly, F. D., & Shannon, W. (1996). A new short form individual quality of life measure (SEIQoL-DW): Application in a cohort of individuals with HIV/AIDS. British Medical Journal, 313(7048), 29-33. |
English |
* HIV-positive |
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