Please see below for when each domain is projected to be updated.
Quality of Life — This domain is scheduled to be updated TBD
| Domain | Sub-Domain | Instrument Name | Description | Citation (Authors) | Language/ Geographic Location |
Population(s) | Details & PDF |
|---|---|---|---|---|---|---|---|
| The Functional Assessment of HIV Infection (FAHI) | The scale has 44 items, includes 5 subscales - physical well-being, function and global well-being, emotional well-being/living with HIV, social well-being, cognitive functioning | Peterman, A. H., Cella, D., Mo, F., & McCain, N. (1997). Psychometric validation of the revised functional assessment of human immunodeficiency virus infection (FAHI) quality of life instrument. Quality of Life Research, 6(6), 572-584. |
English |
* HIV-positive |
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| HIV/AIDS-targeted quality of life (HAT-QoL) instrument: | The scale has 42 items. It contains nine dimensions of function and well-being: overall function, sexual function, disclosure worries, health worries, financial worries, HIV mastery, life satisfaction, medical concerns, provider trust. | Holmes, W. C., & Shea, J. A. (1998). A new HIV/AIDS-targeted quality of life (HAT-QoL) instrument: Development, reliability, and validity. Medical Care, 36(2), 138-154. Development, Reliability, and Validity # William C. Holmes and Judy A. Shea |
English |
* HIV-positive |
View Details | ||
| Health-related quality of life of HIV-infected women: Evidence for the reliability, validity and responsiveness of the medical outcomes study short-form 20 | The scale measures health related quality of life using six subscales: physical functioning (6 items), role functioning (2 items), social functioning (1 item), mental health (5 items), general health perceptions (5 items) and pain (1 item). | Smith, M. Y., Feldman, J., Kelly, P., DeHovitz, J. A., Chirgwin, K., & Minkoff, H. (1996). Health-related quality of life of HIV-infected women: Evidence for the reliability, validity and responsiveness of the medical outcomes study short-form 20. Quality of Life Research, 5(1), 47-55. |
English |
* HIV-positive * Women |
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| Living with HIV/AIDS Scale | Living with HIV Scale is "developed using informant's language and expressions from interviews. Where possible, exact descriptive clauses are retained and used as items. A questionnaire is developed consisting of 32 items that represent a domain [Avoiding the fear zone, Cherishing the environment, Loss, Body Image, Juggling treatment & side-effects, Coveting time, Death calculations, Independence, and Resolving spiritual issues]. The response format used a Likert scale where 0 = no experience/not appropriate, 1 = never/not true, 2 = sometimes true, 3 = usually true, and 4 = always true. A higher total score is interpreted to mean that the subjects have a more positive perception of the quality of their life while living with HIV. Two factors comprise the Living With HIV Scale: HIV Struggles and HIV Reverence" (p. 624). | Holzemer, W. L., Spicer, J. G., Wilson, H. S., Kemppainen, J. K., & Coleman, C. (1998). Validation of the quality of life scale: Living with HIV. Journal of Advanced Nursing, 28(3), 622-630. |
English |
* HIV-positive |
View Details | ||
| World Health Organization's WHOQOL-BREF quality of life assessment | The WHOQOL-BREF is a 26-item scale, which is a brief version of the WHO QOL-100 (100-item scale), and has four domain scores. There are also two items that are examined separately, i.e., an individual's overall perception of quality of life and the individual's overall perception of his or her health. The main domains studied are physical domain, psychological domain, social relationships domain and environment domain. The domain scores are scaled in a positive direction (i.e., higher scores denote higher quality of life). The mean scores are then used to calculate the domain score. | Skevington, S. M., Lotfy, M., & O'Connell, K. A. (2004). The world health organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A report from the WHOQOL group. Quality of Life Research, 13(2), 299-310. |
English |
* HIV-negative |
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| Quality of life enjoyment and satisfaction questionnaire | "This questionnaire assesses satisfaction in 11 life areas, such as physical health, social relationships, and economic status. Items are rated from 1 (very poor) to 5 (very good), then summed to yield a total score" | Endicott, J., Nee, J., Harrison, W., & Blumenthal, R. (1993). Quality of life enjoyment and satisfaction questionnaire: A new measure. Psychopharmacology Bulletin, 29, 321-321. |
English |
* HIV-negative |
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| Spitzer Quality of Life Index | It was designed for use by physicians. Median completion time was one minute. "Physical, social, and emotional aspects of life are represented by five single-item dimensions (activity, health, support, outlook, and daily living). Specific evaluations include questions regarding the participant's occupational situation (activity); activities of daily living such as eating, hygiene, and transportation (daily living); participant's perception of health and energy levels (health); support and contact of friends and family (support); and assessment of the participant's outlook on life (in control of personal circumstances, anxiety, depression). Each item is scored from 0 to 2, with 2 representing the highest level of functioning. A composite score ranging from 0 to 10 is the sum of the item scores." | Spitzer, W. O., Dobson, A. J., Hall, J., Chesterman, E., Levi, J., Shepherd, R., et al. (1981). Measuring the quality of life of cancer patients: A concise QL-index for use by physicians. Name Journal of Chronic Diseases, 34(12), 585. |
English |
* Patients * HIV-negative |
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| HIV-PARSE Questionnaire | The instrument is designed to do patient reported health status assessments. It has four main sections: demographic background, risk group and life circumstances; health status, including a quality of life measure; utilization of health services; a checklist of symptoms and symptom impact. The questions on health status and quality of life were modified from the Patient Assessment Questionnaire used in the RAND Medical Outcomes Study. Modifications were made "to improve the quality of measurement for an HIV population versus a general patient population". | Berry, S., Bozzette, S., Hays, R., Stewart, A., & Kanouse, D. (1994). Measuring patient-reported health status in advanced HIV disease: HIV-PARSE survey instrument. |
English |
* HIV-positive * Patients |
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| Health Related Quality of Life in HIV Disease | The instrument has 64 items. "Most of the measures were adapted from the HIV-PARSE." This is a "two factor model: a) a physical health dimension defined by physical function, role function, freedom from pain, disability days and quality of sex life, and b) a mental health dimension defined by overall quality of life, emotional well-being, hopefulness, lack of loneliness, will to function, quality of family life, quality of friendships and cognitive function/distress." | Hays, R. D., Cunningham, W. E., Ettl, M. K., Beck, C. K., & Shapiro, M. F. (1995). Health related quality of life in HIV disease. Assessment, 2(4), 363. |
English |
* HIV-positive |
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| A health status questionnaire using 30 items from the medical outcomes study | Generic measure. The 30-item instrument contains a subset of the MOS (Medical Outcomes Study) measures of health-related quality of life. The questionnaire measures ten aspects of health and takes less than 5 minutes to complete. It measures: overall health, pain, physical functioning, role functioning, social functioning, mental health, energy/fatigue, health distress, cognitive functioning, quality of life, health transition. | Wu, A. W., Rubin, H. R., Mathews, W. C., Ware Jr, J. E., Brysk, L. T., Hardy, W. D., et al. (1991). A health status questionnaire using 30 items from the medical outcomes study. Medical Care, 29(8), 786-798. |
English |
* HIV-positive |
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| Combination of 3 HRQOL Scales | The scale is based on three other QOL measures: three HRQOL instrument, the 38-item HIV-PARSE (Berry et al., 1994), a 56-item HRQOL measure used in the HIV Outcomes Study (HOS) (Hays et al., 1995) and the 30-item MOS-HIV (Wu et al., 1991). "The measure contains 42 items: 30 are derived from the HIV-PARSE (Berry et al.), 4 are from the HOS (Hays et al.), 4 are from the MOS-HIV (Wu et al.) and 4 are developed de novo. | Globe, D. R., Hays, R. D., & Cunningham, W. E. (1999). Associations of clinical parameters with health-related quality of life in hospitalized persons with HIV disease. AIDS Care, 11(1), 71-86. |
|
* HIV-positive * Patients |
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| Health related quality of life interview scale | The "health-related quality of life" interview schedule is designed to assess HIV infected persons' (a) life satisfaction, measured by 1 item from Andrews and Wilhey's (1976) measure; (b) general health perception; (c) physical functioning, measured by 6 items adapted from the Jette, Davies, Cleary, et al. (1986) Functional Status Questionnaire; (d) emotional well-being and fatigue, measured by 5 items selected from the Functional Status Questionnaire (Jette, Davies, Clearly, et al., 1986), and Stewart, Hays, and Ware's (1988) MOS Short-Form--Fatigue Subscale; (e) disability; (f) pain; (g) memory problems measured by 2 items selected from Winterling, Crook, Salama, and Gobert's (1986) Memory Assessment Clinic Self-Rating Scale; (h) symptoms; and (i) illness severity, measured by Justice, Feinstein, and Wells' (1989) measure. | Cleary, P. D., Fowler Jr, F. J., Weissman, J., Massagli, M. P., Wilson, I., Seage III, G. R., et al. (1993). Health-related quality of life in persons with acquired immune deficiency syndrome. Medical Care, 31(7), 569-580. |
English |
* HIV-positive * Patients |
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| EuroQol (EQ-5D) | The EQ-5D includes a weighted sum of five domains (EQ-5D Index) and a visual analog scale (EQ-VAS). | Wu, A. W., Jacobson, D. L., Frick, K. D., Clark, R., Revicki, D. A., Freedberg, K. A., et al. (2002). Validity and responsiveness of the euroqol as a measure of health-related quality of life in people enrolled in an AIDS clinical trial. Quality of Life Research, 11(3), 273-282. |
English |
* HIV-positive |
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| Satisfaction with Life Scale (SWLS) | The five-item scale measures subjective life satisfaction. The response options are on the 7-point scale from 1 =strongly disagree to 7 = strongly agree. | Diener, E. D., Emmons, R. A., Larsen, R. J., & Griffin, S. (1985). The satisfaction with life scale. Journal of Personality Assessment, 49(1), 71-75. |
English |
* Students * HIV-positive |
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| ISSQoL | The final version of ISSQoL includes two sections: HRQoL Core Evaluation Form (9 domains) and Additional Important Areas for HRQoL (6 domains). The ISSQoL was administered together with two additional forms: a Daily Impact of Symptoms Form and a Demographic Information Form. The Additional Important Areas for HRQoL include social support, interaction with medical staff, treatment impact, body changes, life planning, and motherhood/fatherhood. | Bucciardini, R., Murri, R., Guarinieri, M., Starace, F., Martini, M., Vatrella, A., et al. (2006). ISSQoL: A new questionnaire for evaluating the quality of life of people living with HIV in the HAART era*. Quality of Life Research, 15(3), 377-390. |
Italian |
* HIV-positive |
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| Quality of Life Index | The authors examined the psychometric properties of the Quality of Life Index (QLI) (Ferrans & Powers, 1985a). It was found that four dimensions underlie the QLI: health and functioning, socioeconomic, psychological/spiritual, and family. The original scale is "a 64-item measure composed of two parts: Part I measures satisfaction with various domains of life, and Part 11 measures the importance of the same domains to the subject. Subjects respond to the items on 6-point scales: for Part I the scale ranges from "very satisfied" (6) to "very dissatisfied" (1) (coded +2.5 to -2.5 for analysis), and for Part I1 it ranges from "very important" (6) to "very unimportant" (1)." Information on scoring is provided on page 31 of the article. The scoring procedure: "the satisfaction rating for each item was multiplied by its respective importance rating, yielding an adjusted item score. The adjusted item scores were then summed to produce the domain subscale scores and an overall QOL score." | Ferrans, C. E., & Powers, M. J. (1992). Psychometric assessment of the quality of life index. Research in Nursing & Health, 15(1) |
English |
* Patients * HIV-negative |
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| Schedule for Evaluation of Individual Quality of Life (SEIQoL)SEIQoL-DW) | A brief measure, the SEIQoL-DW "is derived from the schedule for evaluation of individual quality of life (SEIQoL). The measure allows respondents to nominate the areas of life which are most important, rate their level of functioning or satisfaction with each, and indicate the relative importance of each to their overall quality of life. Given its practicality and brevity, the measure should prove particularly useful in clinical situations where patient generated data on quality of life is important." "The direct weighting instrument is a simple apparatus consisting of five interlocking, colored laminated circular disks that can be rotated around a central point to form a type of pie chart. The laminated disks are mounted on a larger backing disk, which displays a scale from 0 to 100, and from which the relative size of each colored segment can be read (fig 1). Each segment is labelled with a life area nominated by the respondent as being important to his or her overall quality of life. The respondent adjusts the disks until the size of each colored segment corresponds to the relative importance of the life area represented by that segment. These segments may be adjusted and readjusted until respondents are satisfied that the proportion of the pie chart given to each life area accurately reflects the relative weights they attach to those life areas. If the respondent nominates fewer than five cues, the system allows for a corresponding number of segments to be manipulated." | Hickey, A. M., Bury, G., O'Boyle, C. A., Bradley, F., O'Kelly, F. D., & Shannon, W. (1996). A new short form individual quality of life measure (SEIQoL-DW): Application in a cohort of individuals with HIV/AIDS. British Medical Journal, 313(7048), 29-33. |
English |
* HIV-positive |
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