Please see below for when each domain is projected to be updated.
Quality of Life — This domain is scheduled to be updated TBD
| Domain | Sub-Domain | Instrument Name | Description | Citation (Authors) | Language/ Geographic Location | Population(s) | Details & PDF |
|---|---|---|---|---|---|---|---|
| The Functional Assessment of HIV Infection (FAHI) | The scale has 44 items, includes 5 subscales - physical well-being, function and global well-being, emotional well-being/living with HIV, social well-being, cognitive functioning | Peterman, A. H., Cella, D., Mo, F., & McCain, N. (1997). Psychometric validation of the revised functional assessment of human immunodeficiency virus infection (FAHI) quality of life instrument. Quality of Life Research, 6(6), 572-584. |
English |
* HIV-positive |
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| HIV/AIDS-targeted quality of life (HAT-QoL) instrument: | The scale has 42 items. It contains nine dimensions of function and well-being: overall function, sexual function, disclosure worries, health worries, financial worries, HIV mastery, life satisfaction, medical concerns, provider trust. | Holmes, W. C., & Shea, J. A. (1998). A new HIV/AIDS-targeted quality of life (HAT-QoL) instrument: Development, reliability, and validity. Medical Care, 36(2), 138-154. Development, Reliability, and Validity # William C. Holmes and Judy A. Shea |
English |
* HIV-positive |
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| Health-related quality of life of HIV-infected women: Evidence for the reliability, validity and responsiveness of the medical outcomes study short-form 20 | The scale measures health related quality of life using six subscales: physical functioning (6 items), role functioning (2 items), social functioning (1 item), mental health (5 items), general health perceptions (5 items) and pain (1 item). | Smith, M. Y., Feldman, J., Kelly, P., DeHovitz, J. A., Chirgwin, K., & Minkoff, H. (1996). Health-related quality of life of HIV-infected women: Evidence for the reliability, validity and responsiveness of the medical outcomes study short-form 20. Quality of Life Research, 5(1), 47-55. |
English |
* HIV-positive * Women |
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| Living with HIV/AIDS Scale | Living with HIV Scale is "developed using informant's language and expressions from interviews. Where possible, exact descriptive clauses are retained and used as items. A questionnaire is developed consisting of 32 items that represent a domain [Avoiding the fear zone, Cherishing the environment, Loss, Body Image, Juggling treatment & side-effects, Coveting time, Death calculations, Independence, and Resolving spiritual issues]. The response format used a Likert scale where 0 = no experience/not appropriate, 1 = never/not true, 2 = sometimes true, 3 = usually true, and 4 = always true. A higher total score is interpreted to mean that the subjects have a more positive perception of the quality of their life while living with HIV. Two factors comprise the Living With HIV Scale: HIV Struggles and HIV Reverence" (p. 624). | Holzemer, W. L., Spicer, J. G., Wilson, H. S., Kemppainen, J. K., & Coleman, C. (1998). Validation of the quality of life scale: Living with HIV. Journal of Advanced Nursing, 28(3), 622-630. |
English |
* HIV-positive |
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| World Health Organization's WHOQOL-BREF quality of life assessment | The WHOQOL-BREF is a 26-item scale, which is a brief version of the WHO QOL-100 (100-item scale), and has four domain scores. There are also two items that are examined separately, i.e., an individual's overall perception of quality of life and the individual's overall perception of his or her health. The main domains studied are physical domain, psychological domain, social relationships domain and environment domain. The domain scores are scaled in a positive direction (i.e., higher scores denote higher quality of life). The mean scores are then used to calculate the domain score. | Skevington, S. M., Lotfy, M., & O'Connell, K. A. (2004). The world health organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A report from the WHOQOL group. Quality of Life Research, 13(2), 299-310. |
English |
* HIV-negative |
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| Quality of life enjoyment and satisfaction questionnaire | "This questionnaire assesses satisfaction in 11 life areas, such as physical health, social relationships, and economic status. Items are rated from 1 (very poor) to 5 (very good), then summed to yield a total score" | Endicott, J., Nee, J., Harrison, W., & Blumenthal, R. (1993). Quality of life enjoyment and satisfaction questionnaire: A new measure. Psychopharmacology Bulletin, 29, 321-321. |
English |
* HIV-negative |
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| Spitzer Quality of Life Index | It was designed for use by physicians. Median completion time was one minute. "Physical, social, and emotional aspects of life are represented by five single-item dimensions (activity, health, support, outlook, and daily living). Specific evaluations include questions regarding the participant's occupational situation (activity); activities of daily living such as eating, hygiene, and transportation (daily living); participant's perception of health and energy levels (health); support and contact of friends and family (support); and assessment of the participant's outlook on life (in control of personal circumstances, anxiety, depression). Each item is scored from 0 to 2, with 2 representing the highest level of functioning. A composite score ranging from 0 to 10 is the sum of the item scores." | Spitzer, W. O., Dobson, A. J., Hall, J., Chesterman, E., Levi, J., Shepherd, R., et al. (1981). Measuring the quality of life of cancer patients: A concise QL-index for use by physicians. Name Journal of Chronic Diseases, 34(12), 585. |
English |
* Patients * HIV-negative |
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| HIV-PARSE Questionnaire | The instrument is designed to do patient reported health status assessments. It has four main sections: demographic background, risk group and life circumstances; health status, including a quality of life measure; utilization of health services; a checklist of symptoms and symptom impact. The questions on health status and quality of life were modified from the Patient Assessment Questionnaire used in the RAND Medical Outcomes Study. Modifications were made "to improve the quality of measurement for an HIV population versus a general patient population". | Berry, S., Bozzette, S., Hays, R., Stewart, A., & Kanouse, D. (1994). Measuring patient-reported health status in advanced HIV disease: HIV-PARSE survey instrument. |
English |
* HIV-positive * Patients |
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| Health Related Quality of Life in HIV Disease | The instrument has 64 items. "Most of the measures were adapted from the HIV-PARSE." This is a "two factor model: a) a physical health dimension defined by physical function, role function, freedom from pain, disability days and quality of sex life, and b) a mental health dimension defined by overall quality of life, emotional well-being, hopefulness, lack of loneliness, will to function, quality of family life, quality of friendships and cognitive function/distress." | Hays, R. D., Cunningham, W. E., Ettl, M. K., Beck, C. K., & Shapiro, M. F. (1995). Health related quality of life in HIV disease. Assessment, 2(4), 363. |
English |
* HIV-positive |
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| A health status questionnaire using 30 items from the medical outcomes study | Generic measure. The 30-item instrument contains a subset of the MOS (Medical Outcomes Study) measures of health-related quality of life. The questionnaire measures ten aspects of health and takes less than 5 minutes to complete. It measures: overall health, pain, physical functioning, role functioning, social functioning, mental health, energy/fatigue, health distress, cognitive functioning, quality of life, health transition. | Wu, A. W., Rubin, H. R., Mathews, W. C., Ware Jr, J. E., Brysk, L. T., Hardy, W. D., et al. (1991). A health status questionnaire using 30 items from the medical outcomes study. Medical Care, 29(8), 786-798. |
English |
* HIV-positive |
View Details |
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