Please see below for when each domain is projected to be updated.
Quality of Life — This domain is scheduled to be updated TBD
| Domain | Sub-Domain | Instrument Name | Description | Citation (Authors) | Language/ Geographic Location | Population(s) | Details & PDF |
|---|---|---|---|---|---|---|---|
| The Functional Assessment of HIV Infection (FAHI) | The scale has 44 items, includes 5 subscales - physical well-being, function and global well-being, emotional well-being/living with HIV, social well-being, cognitive functioning | Peterman, A. H., Cella, D., Mo, F., & McCain, N. (1997). Psychometric validation of the revised functional assessment of human immunodeficiency virus infection (FAHI) quality of life instrument. Quality of Life Research, 6(6), 572-584. |
English |
* HIV-positive |
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| HIV/AIDS-targeted quality of life (HAT-QoL) instrument: | The scale has 42 items. It contains nine dimensions of function and well-being: overall function, sexual function, disclosure worries, health worries, financial worries, HIV mastery, life satisfaction, medical concerns, provider trust. | Holmes, W. C., & Shea, J. A. (1998). A new HIV/AIDS-targeted quality of life (HAT-QoL) instrument: Development, reliability, and validity. Medical Care, 36(2), 138-154. Development, Reliability, and Validity # William C. Holmes and Judy A. Shea |
English |
* HIV-positive |
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| Living with HIV/AIDS Scale | Living with HIV Scale is "developed using informant's language and expressions from interviews. Where possible, exact descriptive clauses are retained and used as items. A questionnaire is developed consisting of 32 items that represent a domain [Avoiding the fear zone, Cherishing the environment, Loss, Body Image, Juggling treatment & side-effects, Coveting time, Death calculations, Independence, and Resolving spiritual issues]. The response format used a Likert scale where 0 = no experience/not appropriate, 1 = never/not true, 2 = sometimes true, 3 = usually true, and 4 = always true. A higher total score is interpreted to mean that the subjects have a more positive perception of the quality of their life while living with HIV. Two factors comprise the Living With HIV Scale: HIV Struggles and HIV Reverence" (p. 624). | Holzemer, W. L., Spicer, J. G., Wilson, H. S., Kemppainen, J. K., & Coleman, C. (1998). Validation of the quality of life scale: Living with HIV. Journal of Advanced Nursing, 28(3), 622-630. |
English |
* HIV-positive |
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| HIV-PARSE Questionnaire | The instrument is designed to do patient reported health status assessments. It has four main sections: demographic background, risk group and life circumstances; health status, including a quality of life measure; utilization of health services; a checklist of symptoms and symptom impact. The questions on health status and quality of life were modified from the Patient Assessment Questionnaire used in the RAND Medical Outcomes Study. Modifications were made "to improve the quality of measurement for an HIV population versus a general patient population". | Berry, S., Bozzette, S., Hays, R., Stewart, A., & Kanouse, D. (1994). Measuring patient-reported health status in advanced HIV disease: HIV-PARSE survey instrument. |
English |
* HIV-positive * Patients |
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| Health Related Quality of Life in HIV Disease | The instrument has 64 items. "Most of the measures were adapted from the HIV-PARSE." This is a "two factor model: a) a physical health dimension defined by physical function, role function, freedom from pain, disability days and quality of sex life, and b) a mental health dimension defined by overall quality of life, emotional well-being, hopefulness, lack of loneliness, will to function, quality of family life, quality of friendships and cognitive function/distress." | Hays, R. D., Cunningham, W. E., Ettl, M. K., Beck, C. K., & Shapiro, M. F. (1995). Health related quality of life in HIV disease. Assessment, 2(4), 363. |
English |
* HIV-positive |
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| Combination of 3 HRQOL Scales | The scale is based on three other QOL measures: three HRQOL instrument, the 38-item HIV-PARSE (Berry et al., 1994), a 56-item HRQOL measure used in the HIV Outcomes Study (HOS) (Hays et al., 1995) and the 30-item MOS-HIV (Wu et al., 1991). "The measure contains 42 items: 30 are derived from the HIV-PARSE (Berry et al.), 4 are from the HOS (Hays et al.), 4 are from the MOS-HIV (Wu et al.) and 4 are developed de novo. | Globe, D. R., Hays, R. D., & Cunningham, W. E. (1999). Associations of clinical parameters with health-related quality of life in hospitalized persons with HIV disease. AIDS Care, 11(1), 71-86. |
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* HIV-positive * Patients |
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| Health related quality of life interview scale | The "health-related quality of life" interview schedule is designed to assess HIV infected persons' (a) life satisfaction, measured by 1 item from Andrews and Wilhey's (1976) measure; (b) general health perception; (c) physical functioning, measured by 6 items adapted from the Jette, Davies, Cleary, et al. (1986) Functional Status Questionnaire; (d) emotional well-being and fatigue, measured by 5 items selected from the Functional Status Questionnaire (Jette, Davies, Clearly, et al., 1986), and Stewart, Hays, and Ware's (1988) MOS Short-Form--Fatigue Subscale; (e) disability; (f) pain; (g) memory problems measured by 2 items selected from Winterling, Crook, Salama, and Gobert's (1986) Memory Assessment Clinic Self-Rating Scale; (h) symptoms; and (i) illness severity, measured by Justice, Feinstein, and Wells' (1989) measure. | Cleary, P. D., Fowler Jr, F. J., Weissman, J., Massagli, M. P., Wilson, I., Seage III, G. R., et al. (1993). Health-related quality of life in persons with acquired immune deficiency syndrome. Medical Care, 31(7), 569-580. |
English |
* HIV-positive * Patients |
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| ISSQoL | The final version of ISSQoL includes two sections: HRQoL Core Evaluation Form (9 domains) and Additional Important Areas for HRQoL (6 domains). The ISSQoL was administered together with two additional forms: a Daily Impact of Symptoms Form and a Demographic Information Form. The Additional Important Areas for HRQoL include social support, interaction with medical staff, treatment impact, body changes, life planning, and motherhood/fatherhood. | Bucciardini, R., Murri, R., Guarinieri, M., Starace, F., Martini, M., Vatrella, A., et al. (2006). ISSQoL: A new questionnaire for evaluating the quality of life of people living with HIV in the HAART era*. Quality of Life Research, 15(3), 377-390. |
Italian |
* HIV-positive |
View Details |
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